L-W-O Community

For families whose children live with Paediatric and Primary Lymphoedema

Proud to be invited

Late 2019 I was very proud to be invited to become a Patient Representative of the European Advocacy Group and then in 2020 before lock-down and Covid-19 curtailed everything we do I was thrilled to be asked to become a signatory of the Manifesto shown below and signed by patient organisations across Europe.

L-W-O Supports World Lymphoedema day on the 6th March and I sincerely hope this will get official recognition soon.  In the UK, the British Lymphology Society organises Lymphoedema Awareness Week which coincides with World Lymphoedema Day.


Working with others

Patient representative