Klippel-Trenaunay Syndrome
This Video produced by VASCERN ERN Rare Vascular Diseases
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L-W-O Community
For families whose children live with Paediatric and Primary Lymphoedema
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L-W-O 4 families is part of the L-W-O Community founded by Gaynor Leech in September 2013. All the material on these pages is set out in good faith. Thoughts and interpretations are mine. Every effort has been made to acknowledge sources throughout this website. I am not an expert or medial professional: I have lived with lymphoedema since 2011. My great granddaughter has a lymphatic malformation. However, I am passionate as a patient advocate about raising awareness of lymphoedema, supporting families and encouraging families whose children live with paediatric and primary lymphoedema to become their own advocates.
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