L-W-O Community

For families whose children live with Paediatric and Primary Lymphoedema

Blog posts : "General"

One families journey of living with a rare disease

An interview with Sebastian’s mother by Pernille Henriksen (@the_lympha)

Published by Gaynor Leech: Founder of L-W-O Community


The first few steps in the journey of a rare disease


It was March 2018 when my youngest son Sebastian was born. He has congenital lymphoedema. Nobody in the hos…

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Successful First Month

When you start a new project there is always that question “Have I done enough?”, even though you know you have put hours into the research and presentation there are always anxious moments.  With our new family’s website launched on 31st July 2020 there was no waiting with bated breath the h…

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Welcome to L-W-O Community 4 Families

Author: Gaynor Leech Founder of L-W-O Community


Introducing our new Family Website for those families whose children live with Paediatric and Primary lymphoedema. If you have not been on our website before, welcome!  In 2015/16 I was repeatedly asked by members of our adult support group would …

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